Nodding Disease

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Last night I was lying in bed when Bunger came into the bedroom. He mentioned that he read about this scary new disease and told me the symptoms. I gave him a ‘are you stupid?’ look, which he is quite familiar with, and he told me he was serious.

I picked up my iPhone and went to my Huffington Post app. Sure as shit, Bunger was right about this scary new disease. Damn. I hate when he’s right.

The disease he was talking about is called Nodding Disease. And for some mysterious reason, this disease only attacks children of ages 1 to 19. In fact, in Uganda there are 3,000 children that suffer from this disease. And it seems the child’s personalities completely change from who they were.

The symptoms seem to weaken the person and cause the person to start fires, of all things. This debilitating disease also seems to have epilepsy-like symptoms with recovery time taking hours. This makes the child completely dependent on someone else to care for them. Sometimes the child may even wander off in a vegetative state, forcing the parents to tie their children to a wooden pole/home. Even the WHO (World Health Organization) are perplexed by this.

 
And I can tell you this: This is freaky as hell and blows my mind.

 
To read the full story on CNN you can click here:
http://www.cnn.com/2012/03/19/world/africa/uganda-nodding-disease/index.html

 

*A special thanks to CNN for allowing me to use photo

The Waiting Game

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This post was originally written 6-18-11

There is a new game I am playing called The Waiting Game. I know many people have played this game before, but perhaps in a different version. Not everyone wants to play the game but we usually have no choice.

I have not heard much from the short term disability insurance or Social Security. I received a letter from the short term disability insurance stating that I am denied any more income unless I have more medical notes stating otherwise. I realized I had a couple pages that I never sent, so I faxed them over immediately. I called them to make sure they received the fax (because I want this over with and technology is only useful when it works properly) and they did. The caseworker asked if I had returned back to work and I replied that I had not because I was still having headaches every day. She mentioned they only allow so many disability days for headaches and she would forward the information to the reviewing group.

Also around this time, I also received a letter from Social Security addressing who is handling my case. Good to know that is finally on a roll!

As the saying goes, “When it rains, it pours.” One of my roommates (that happens to be the owner of the house) gave me notice that his girlfriend might move in and if she does, I can no longer consider myself a resident at the house. His wishes are completely understandable and usually that expected when someone has been with someone for so long. But that sucks for me! As expected, she has decided she wants to move in. Shit. I cannot find an apartment because I have no income. There are income based apartments, but I am finding that the waiting lists are six months to one year which astounds me.

Being in a pickle, I ran to my safe haven (my mother) and she said that I could not move in since my step-dad isn’t fond of my dog, it would upset their old dog, etc. She suggested that I give up Storm or let someone watch her during this challenging time. I told her I will live in my vehicle before that happens. She is the only thing I have right now. I have no income, no residence and certainly do not have my health!

I am pretty confident that I will visit my dad for some time in the cozy, little, California town called Camarillo. I cannot live there as I have tried in the past and it did not work out; I can’t stand to be that far away from my safe haven. But it is such a relaxing place. The weather is spectacular and usually never gets hot enough to turn on an air conditioner. I would be able to see my grandparents (that I have not been able to spend much time with during my childhood) as well as my awesome step-brothers and step-mom. On the side of some roads you can buy bright, red, juicy strawberries that were just hand picked. My dad also has dogs that Storm can run, jump, and play with. Which means I wont have to worry about her. I’m thinking the change of scenery might be nice.

Right now I am planning to live with my sister, Melissa, in her cramped, kid-filled trailer. It should be quite interesting seeing the last time we lived together was in high school and we were always fighting. It should also be interesting in the fact that she has three (adorable) kids and I am not used to being around kids.

I am learning so much from The Waiting Game. A major lesson learned is you find out who your true friends are and who is actually there for you. I have been disappointed from a couple people but I suppose that is to be expected.

I have my bat in place and ready for the next pitch to come my way from The Waiting Game. I can’t help but wonder if it will be a curve ball. Well, go ahead…give me your best shot!!

Thanks to http://www.sportsclipart.com for use of image

Lessons From Surgery

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This blog post was origingally written on 6-21-11.

My mom kept getting after me about staying at her place after my gallbladder surgery. Over and over I told her no and that I would be fine. I figured, I would need help for about three hours. But, she was right… again.

My recovery from surgery was difficult (Please keep in mind of my illnesses, every surgery is different for everyone). Surgery knocked me on my butt. Upon waking up, I realized I needed to go recover at my mom’s because there’s no way I could do it at my place alone. So much for trying to prove that I was right.

During the first couple days I was completely helpless. The surgery kickstarted my fibromylgia. Not only was my anterior side in pain but my posterier side as well.The heating pad and I became best friends that week.

I was so weak that I could not even lay myself down for bed. My mother would put her arm under my neck while her other held my hand. At one point the pain so bad that she couldn’t lower me with her arm under my neck. I had to end up “falling” on my back to lay down.

The headaches were still a daily occurence. At times the headaches made it impossible to sleep, which was the only relief I had. They put me on Vicodin and four others (at a single time of couse) but they were too much for my stomach and made me sick. The anethesia was still in my system which also made me nauseous. I don’t think I will have another cracker ever again seeing it was my every meal.

I have never been that depressed and often broke down. I wished the days away, hoping the next day I would magically feel better and would be bouncing all over the place. I was tired of being in pain; I just wanted to be pain free. All I could do is sit there and try to find ways to keep myself sane.

While growing up, our mom (and sometimes society) taught my sister and I to be strong and not to show any emotion. We ended up perfecting this. My sister and I have a tendency to be strong and believe that we don’t need a man in our life. That we will be fine and can do everything on our own. And I feel we can. But you know what? Living life alone isn’t very fun.

For the first time in my life, I very much wanted someone else in my life. I know my mother won’t be around forever. I can’t depend on her to always take care of me when I can’t take care of myself. My mom didn’t mind babying me that week but I felt like such a burden. Some of my support group members/friends are all in different states. I felt completely alone. It’s nice to know that someone will always be there for you. And it’s nice to share experiences with someone else.

I thought that maybe from now on, I should meet guys the “old fashion” way and not by computer. But with my condition of everything going on right now, I decided to log back on to Match.com after I promised myself that I would stay away from the site. But, now I am excited to see what the future will bring.